In our last article, we explored how to recognise the early signs of autism in toddlers—the subtle differences that sometimes stand out as your little one grows and develops. Maybe you noticed that your child doesn’t respond to their name, avoids eye contact, or prefers playing alone. These observations can leave you with a mix of curiosity, concern, and a deep desire to understand what’s going on.
If you’ve reached that point—where you’re wondering whether your child might be autistic—you’re not alone. Many parents walk this road, full of questions and searching for answers. The next natural step after recognising the signs is seeking a formal diagnosis. This article is here to gently walk you through that process in the UK—step by step, in plain language, with your child’s wellbeing at the centre of it all.
Understanding the purpose of a diagnosis
First, it’s important to understand why an autism diagnosis matters. It’s not about labelling your child. A diagnosis opens the door to support services, early interventions, and a better understanding of how your child experiences the world. It helps you, caregivers, educators, and healthcare professionals work together to give your child the tools they need to thrive.
And no—getting a diagnosis doesn’t change who your child is. It simply gives their unique way of being a name and a framework to work with.
Step 1: Talk to your GP or Health Visitor
If you’ve noticed behaviours that concern you—like delays in speech, avoiding eye contact, repetitive movements, or difficulty with social interaction—the best place to start is a conversation with your GP or health visitor.
You might say something like:
“I’ve noticed that my toddler doesn’t respond to their name, avoids eye contact, and doesn’t use many words yet. I’ve read that these could be early signs of autism. I’d like to understand whether an assessment might be needed.”
You may feel nervous bringing this up, but remember: you’re your child’s strongest advocate. No one knows them like you do.
Tip: Before the appointment, jot down what you’ve observed. Include specific examples and note when the behaviours started. If possible, ask your child’s nursery or childminder to share their observations too.
Step 2: The referral process
If your GP or health visitor agrees that further investigation is needed, they’ll refer your child for a developmental assessment. Depending on where you live in the UK, this might be to:
- A Community Paediatrician
- A Child Development Centre
- CAMHS (Child and Adolescent Mental Health Services) if your child is older
- Other specialists such as Speech and Language Therapists or Occupational Therapists
Unfortunately, waiting times can vary — sometimes several months to a year. While this can be frustrating, you can still begin to access some early support while you wait (we’ll talk more about that below).
Step 3: The autism assessment
Once you get an appointment, your child will be assessed by a team of professionals. This team may include a paediatrician, psychologist, speech therapist, or occupational therapist, depending on your local NHS service.
The assessment may include:
- Developmental history interview
You’ll be asked about your child’s developmental milestones, behaviour, routines, and social interactions.
- Observation
A professional will observe how your child plays, communicates, and interacts in a structured setting. They may use tools like the ADOS-2 (Autism Diagnostic Observation Schedule) or similar assessments.
- Feedback from other settings
Nursery staff or childminders may be asked to complete questionnaires or provide reports on how your child behaves in group settings.
- Health screenings
These rule out other factors like hearing or vision issues that could affect development.
This whole process may take several sessions. Try not to rush it — getting a clear picture is vital for building the right support plan.
Step 4: Receiving the diagnosis
Once the assessment is complete, you’ll be invited to a feedback appointment. If the team determines that your child meets the criteria for Autism Spectrum Disorder (ASD), they’ll explain what that means in your child’s case.
You’ll receive a written report outlining:
- The diagnosis (if given)
- Key areas of strength and difficulty
- Recommendations for support
- Referrals for additional services
This report is incredibly important. You’ll use it when applying for educational support, financial assistance, or therapy services.
It’s completely normal to feel a mix of emotions at this point—relief, worry, sadness, or even confusion. Give yourself space to process it. The most important thing hasn’t changed: your child is still the same incredible person they’ve always been.
Step 5: What happens next?
Educational support
You can now access additional help for your child through:
- SEN (Special Educational Needs) support at nursery or school
- Applying for an EHCP (Education, Health and Care Plan) if your child needs more structured or long-term support
Therapy Services
Your child may be referred for:
- Speech and Language Therapy
- Occupational Therapy
- Behavioural support or play therapy
Even without a formal diagnosis, your child may be eligible for some of these services based on need.
Financial support
Families may be able to apply for:
- Disability Living Allowance (DLA)
- Carer’s Allowance
- Support with travel costs or equipment
Your local authority’s social care team can guide you through what’s available.
Parent support
There are fantastic parent-led groups, courses, and online communities where you can find advice, understanding, and connection. You’re not alone.
Final thoughts of getting an autism diagnosis in the UK
Getting an autism diagnosis is a journey, and no two paths are exactly the same. You may feel moments of uncertainty and grief alongside relief and clarity. That’s okay. This process is not about defining your child — it’s about empowering them and equipping you as their biggest cheerleader. And as you learn more, you’ll begin to see the world through your child’s eyes. You’ll discover their strengths, celebrate their quirks, and help them navigate life with understanding and joy.
Your child is not behind. They’re on their own timeline, following their own beautiful path. And you’re doing an incredible job walking alongside them.
